October 21, 2022
Riverwood Golf Course
400 Riverwood Drive
Clayton, NC 27527
$175.00 for an individual
$600.00 for a foursome
Registration closes Oct. 17, 2022 at 11:59 pm
Individual and Foursome team registration include a round of golf, tee gifts, brunch, dinner and golf shirt. Please select the appropriate registration option by clicking the register button below.
If you are unable to join us but would like to donate, please click the button below.
Thank you for your interest in sponsoring the 9th Annual Driving “Fore” A Cure for PH Golf Tournament! Please review sponsorship opportunities here, and reach out to firstname.lastname@example.org to purchase sponsorship online.
Checks are also acceptable and should be made out to PHA and mailed to:
Driving “Fore” A Cure for PH
144 E. King St, Ste 1471
Hillsborough, NC 27278
Be sure to print, complete and send the sponsorship form along with your check.
For any questions contact Jayna Wall at Jayna@drivingforeacureforph.com.
SCHEDULE OF EVENTS:
8:30 – 9:30 – Registration
10:00 – 3:00 – Golf Tournament (Brunch provided)
3:00 – 3:30 – Dinner and Guest Speaker
3:30 – 4:00 – Silent Auction & Awards Ceremony
More about this event
The Ninth Annual Driving "Fore" A Cure For PH golf tournament will be held on October 21st, 2022 at Riverwood Golf Course in Clayton, NC. Our goal is to raise $50,000 for research. 100% of the proceeds will go towards research to help find a cure for this disease.There will be great food, gifts, silent auction, and of course a great day of golf. Registration includes golf, tee gifts, brunch, dinner, and golf shirt. For more information about our event, please visit our website www.DrivingForeACureforPH.com.
The inspiration for this golf tournament is our 11 year old son Jackson, who was diagnosed in August of 2012 with Pulmonary Hypertension (PH). PH is a chronic, incurable, progressive, and life-threatening lung disease that creates narrowing of the blood vessels in the lungs which causes additional strain on the right side of the heart. If left untreated, PH can lead to failure of the right side of the heart. Within 48 hours of Jackson being diagnosed, we were told he wouldn’t survive the disease and that he would eventually need a lung or a heart & lung transplant.
PH is often misdiagnosed as less severe conditions, such as asthma, due to the hidden/similar symptoms of PH. Because it is often misdiagnosed, the disease continues to progress, and often patients are not diagnosed until it is too late. Primary Pulmonary Hypertension (PPH) or Idiopathic Pulmonary Arterial Hypertension (IPAH — what Jackson has) is so rare in children that only 1 in 1,000,000 are diagnosed with the disease. Because of it being so rare, even doctors do not understand the disease and treatments in its entirety.
After Jackson was formally diagnosed, we began to speak with specialists at Duke Hospital and Boston Children’s Hospital to create a plan on how to attack this disease. The good news is that we fortunately caught the disease early enough where treatment is still an option. There have been some significant advancements on treatments of Pulmonary Hypertension over the last 10+ years, however, there is only one approved treatment for children with PH and there is still no cure.