Welcome Schleppas!
Welcome Zeppa's Schleppas! Thank you for supporting me in the PHight against Pulmonary Hypertension (PH)! As you have heard from me before, PH can affect anyone of any age, and it is a chronic and life-changing disease that can lead to right heart failure if left untreated. The Pulmonary Hypertension Association (PHA) is essential for extending and improving the lives of those affected by PH.
As most of you know, my journey began in the summer of 2019. Navigating a rare disease is, at times, overwhelming. The PHA has been an invaluable resource and support as I have adjusted to my new normal. In June 2022 I attended my first PHA conference in Atlanta. In May of this year, I again spoke to staff members of all 3 of my congressional legislators advocating for the PHA including easier access to O2 for all.
I am hoping that you can join Phil & me in person at a new location in the Navy Yard. Our new location is easy to access with lots of free parking. It is pet & family friendly. Part of the walking route is even along the riverfront.
If not, I hope you will consider donating to Team Zeppa’s Schleppas.
Your donation will support PHA’s work in a variety of ways including research for new treatments, resources for patient support groups and access to conferences and symposiums for patients and PH medical professionals.
Thank you for helping PHA advance its vision of a world without PH, empowered by hope.
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