Another PHenomenal year
Another year has passed and I am still LIVING with this disease. This is my 10th year since diagnosis. A few years ago I wrote, "Life is good. Every day God is good." This continues to be true. When I was diagnosed in 2013, the median survival was 3-5 years. Well, here we are, no expiration in sight. After a few years of weirdness through Covid and the "after"times, I continue to be so grateful for what I am able to do with and for my family. Physically and mentally, I feel better than I have in at least 5 years. We continue to adventure and I see no end in sight. There are still no new medicines for me right now and the logistics of traveling with oxygen continue to be my biggest challenge BUT...I hold on to HOPE for a cure THIS YEAR! You all have been so generous and I just want you to know how much I appreciate it! I never thought I'd be fundraising for something so personal. I will not give up the PHight. Thanks for journeying with me!
Be joyful in hope, patient in affliction, faithful in prayer. Romans 12:12
In case you want more information about Pulmonary Hypertension, PHAssociation.org has the most reliable, up-to-date information. Don't Google it...it will freak you out! From PHA: Pulmonary hypertension is a rare, under-diagnosed, and often misdiagnosed disease. The disease causes high blood pressure in the pulmonary arteries. This makes it harder for the blood to flow through the lungs to pick up oxygen. This causes potentially life-threatening consequences such as right heart failure. When diagnosed in time, treatments can be administered that improve quality of life and may prolong it. At this time there is no cure; but we believe through research we will find the cure for PH.
Please consider making a donation to my page, and thank you for all you do to help PHA advance its vision of a world without PH, empowered by hope.
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