Welcome to My Personal Page
Hello and welcome to my personal page.
I would like to start off by telling you a little bit about myself and what IPAH is. My name is Monica A Sanchez I am 47yrs old. In 2004 I was just 29 years old and I was diagnosed with a terminal illness called Idiopathic Pulmonary Arterial Hypertension / NYHA (Functional class lllB) also none as IPAH. I was given 3 to 5 years to live. This February will be my 18th year that I've been fighting this illness and I'm still going strong.
Pulmonary Arterial Hypertension it's a rare blood vessel disorder of the lung in which the pressure in the pulmonary artery (the blood vessel that leads from the heart to the lungs) rises above normal levels and may become life threatening. Idiopathic Pulmonary Arterial Hypertension is IPAH and my doctor's don't know how I got it mine is considered unknown. I have had my good day's & my bad day's. But I'm pulling through it. I was on Tracleer, Rovateo (Viagra) when I first was diagnosed. Now I'm on Adcirca, Opsumit and Sub Q Remodulin witch is a subcutaneous IV that I need to place in my fatty tissue so I normally place the Sub-Q on my lower back or upper part of my butt. I hate having to poke myself every 3 to 4 weeks & not being able to do many things like swim or take a shower with out covering my site up. Being on Sud Q Remodulin for the last 12 yrs now. All in all my Dr. @ UCLA (Shelly Shapiro, M.D) has said that I'm doing really well but it’s was time to have another transplant evaluation which I did last year in November at Cedar Sinai. I was blessed that at this time I don’t need a transplant. My lung’s and heart are still doing well with my treatments. I will see my transplant team again in May just to make sure everything is still going well.
My daughter Sadie is now 24 years old and she is my caregiver along with my dad and their both my strength and they keep me fighting and living. My family has been here for me. It has not been easy having this illness. But I try my best each and every day & I ask God to continue giving me the strength to keep on fighting. Even though Idiopathic Pulmonary Arterial Hypertension has no cure at this time and we can't go into remission we only have medications to prolong our life. But I have all the Faith in God that he will get me through it with the help of my family & friends & my Faith in God anything is possible. So I ask that you read up on IPAH/PAH & help raise Awareness you can go to PHAassociation.org for more information.
Our 2022 O2 Breathe walk will be in person this year and I am so excited that we are able to gather together and spread awareness And raise money for Pulmonary Arterial Hypertension. It’s going to be a fun event. But be sure if anything changes due to Covid PHA will be on top of it and making sure that we are all safe and if we do have to cancel the walk again they will let us know. My team and I hope you can join us this year to continue the mission to cure Pulmonary Hypertension
I would like to thank you all for taking the time to read about my Illness and for supporting me in the PHight against Pulmonary Hypertension (PH)! PH can affect anyone of any age, and it is a chronic and life-changing disease that can lead to right heart failure if left untreated. The Pulmonary Hypertension Association (PHA) is focused on extending and improving the lives of those affected by PH. Your donation will support that very work in a variety of ways including research for new treatments, resources for patient support groups and access to conferences and symposiums for patients and PH medical professionals.
Please consider making a donation to my team, and thank you for all you do to help PHA advance its vision of a world without PH, empowered by hope.
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