6th Annual Driving "Fore" A Cure for PH Golf Tournament
Driving “Fore” A Cure For PH Golf Tournament
Friday, November 2, 2018
Riverwood Golf Course
400 Riverwood Drive
Clayton, NC 27527
Map to event.
SCHEDULE OF EVENTS:
9:30 – 10:30 – Registration
11:00 – 3:00 – Golf Tournament (Brunch Provided)
3:00 – 4:00 – Dinner & Guest Speaker
4:00 – 5:30 – Silent Auction & Awards Ceremony
Thank you for your support!
$95.00 for EARLY BIRD individual (until 8/31)
$380.00 for EARLY BIRD foursome (until 8/31)
$125.00 for an individual
$500.00 for a foursome
Online registration is closed.
Indivdual and Foursome team registration include a round of golf, tee gifts, brunch, dinner and golf shirt. Please select the appropriate registration option by clicking the blue register button below.
Thank you for your interest in sponsoring the 6th Annual Driving “Fore” A Cure for PH golf tournament! Please choose your sponsorship selection by clicking on the Become a Sponsor button below.
Checks are also acceptable and should be made out to PHA and mailed to:
Driving “Fore” A Cure for PH
2820 Mebane Rogers Rd.
Burlington, NC 27217
Be sure to print, complete and send the sponsorship form along with your check.
For any questions contact Jayna Wall at Jayna@drivingforeacureforph.com.
More about this event
The Sixth Annual Driving "Fore" A Cure For PH golf tournament will be held on November 2, 2018 at Riverwood Golf Course in Clayton, NC. Our goal is to raise $50,000 for research. 100% of the proceeds will go to the Robyn Barst Pediatric PH Research and Mentoring Fund to help find a cure for this disease and help provide hope for children with PH. There will be great food, gifts, silent auction, and of course a great day of golf. Registration is $125.00 for an individual and $500.00 for a foursome and includes golf, tee gifts, brunch, dinner, and golf shirt. For more information about our event, please visit our website, www.DrivingForeACureforPH.com.
The Driving "Fore" a Cure for PH Golf Tournament is held annually to raise funds and awareness to support PH research and to help find a cure. The inspiration for this golf tournament is our 6 year old son Jackson, who was diagnosed in August of 2012 with Pulmonary Hypertension (PH). PH is a chronic, incurable, progressive, and life-threatening lung disease that creates narrowing of the blood vessels in the lungs, which causes additional strain on the right side of the heart. If left untreated, PH can lead to failure of the right side of the heart. Within 48 hours of Jackson being diagnosed, we were told he wouldn’t survive the disease and that he would eventually need a lung or a heart and lung transplant.
PH is often misdiagnosed as less severe conditions, such as asthma, due to the hidden/similar symptoms of PH. Because it is often misdiagnosed, the disease continues to progress, and often patients are not diagnosed until it is too late. Primary Pulmonary Hypertension (PPH) or Idiopathic Pulmonary Arterial Hypertension (IPAH – what Jackson has) is so rare in children that only 1 in 1,000,000 are diagnosed with the disease. Because of it being so rare, even doctors do not understand the disease and treatments in its entirety.
After Jackson was formally diagnosed we began to speak with specialists at Duke Hospital and Boston Children’s Hospital to create a plan on how to attack this disease. The good news is that we fortunately caught the disease early enough where treatment is still an option. There have been some significant advancements on treatments of Pulmonary Hypertension over the last 10 years, however, there is still no approved treatment for children with PH.